(Lee's Summit, MO, USA)
Just want to give a big thank you to everyone who helped us on our journey with TCMax and marci dosing!
Our daughter was diagnosed with reflux and sandifer syndrome at around 6 weeks old. After being prescribed a super low dose of Zantac, it being recalled that week, then being prescribed a super low dose of omeprazole and her symptoms only getting worse for another week or so we felt hopeless.
I searched online and found this group. I did some research and read through their website and the marci kids study. Then I filled out the questionnaire. Kira reached out to us immediately due to our baby girl's many concerning issues.
I could tell how much she truly cared. She took the time to answer all my questions then I ordered the started kit and began compounding at home.
We did 3 doses per day and mostly had to stay at 20% over her weight-calculated dose.
It took about a week for us to notice a huge difference.
Once we got to the point that we didn't have to increase her dose for 2 months, we started to wean down. First we started with the mid day dose, then the morning dose, then we stopped the night dose all together.
At just over 9 months she's been off meds for about 2 weeks now and doing great!!
It was rough in the beginning not knowing what to do, but this group and everyone who runs it has been so amazing and helpful!
THANK YOU!! 💜💜
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