Finally, an answer!
by Ashley Waite
(Richmond, VA )
I’ve seen and read so many posts that remind me of my own from a few months ago, so I figured I would just write a post to help others.
I am just a parent just like all of you who wanted answers and to help my child who was in constant pain and distress.
The acid battle is rough but you will get through it. So much of what I’ve read where babies/children are on Zantac and low doses of PPI remind me of where we were.
Please read about MARCI dosing.
If you keep them on low doses (for example 2ml of omeprazole or 2.5ml Prevacid a day), then your little one will continue to produce acid and the medicine will always lose. If you give them MARCI dosing two or three times a day, then the medicine will beat the acid. Under-dosing these medicines causes the stomach to produce more acid because it is constantly fighting with them.
That’s why some of you see babies/children stop eating, constantly in distress, crying in pain, congestion, coughing, etc. By under-dosing, the acid battle continues and will never end.
It makes reflux symptoms and pain more severe.
We went through it for months and started MARCI dosing at 12 weeks of age. Emma was on Pepcid/Zantac, Prevacid once a day, Nexium 5mg once a day, dairy allergy, GI DOC who said just add rice cereal, etc. She just kept getting worse. We would have good days then it would stop working and all hell would break lose. She stopped eating, cried all of the time, congested etc. Started the Compound recommended by this medical group with Omeprazole three times a day.
19 days later, I had a beautiful smiling happy baby who liked to suck her thumb! I had no idea she even liked that.
For those of you who are struggling with local compounding tastes, timing, or doing your own, please look into this medical group to recommend Compounding Pharmacies they trust. You’re doctor can send the prescription directly to them as well.
They pharmacies they recommend have a special formulation which makes the medicine (any PPI, like Nexium, Omeprazole, Prevacid) tastes good (like vanilla cake batter) and there is absolutely no timing. You can give with a bottle or food or just by itself. There is no waiting 30 minutes or an hour before feeding. And the compound lasts the full 30 days.
Again, I am just a regular parent from Richmond, VA, but so much of what I’ve read seems like what we went through. If you can’t find a doctor in your area, make an appt with Dr. Jennifer Prince. She is a Pediatrician who works just like any other Pediatrician during the day, but makes time to do telemedicine appts across the world to help parents like us. We did it and now our local Pediatrician is on board with MARCI dosing. She’s even changed her prescribing habits for others since we came into her life.
Fill out the questionnaire and reach out to Kira Volpi and Jeffrey Phillips. They are here to help. And always reach out to this group. There will be flare ups with vaccines, teething, etc. Everyone is here to help each other get through this awful disease.